Contributing Author: Gina Hagler There are 7,000 known rare diseases in the world. Each of them affects less than 1% of the global population, although ultra-rare diseases affect fewer still. The majority of rare and ultra-rare diseases are monogenic in nature, meaning they are caused by an error in a single gene. Years ago, a rare disease diagnosis left parents… [Read More]
There are nearly 7,000 rare diseases affecting approximately 1% of the global population. When your child is affected with one of these rare diseases, and it is so rare it does not even have a name, what do you do? Amber Freed’s decision was to fight like a mother. She recently shared with us what that means for her and… [Read More]
At times mothers do not get enough credit. However, today, let’s shine a light on the scientists who were raising children, at the same time they were making a tremendous impact in their fields. While one may have been discovering radium, another was writing the calculations to launch the Space Shuttle Program. These moms went far and beyond advocating another… [Read More]
Today and this week are the times of year we honor nurses. On this National Nurses Day, we asked Caroline, a local nurse, to share her story. Caroline went to a four-year university and received a Bachelor of Science in Nursing. She took the National Council Licensure Examination (NCLEX) to become a Registered Nurse. Soon after, Caroline completed a one-year… [Read More]
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